🇬🇧Need a better solution /🇩🇰mangler en bedre løsning 🇩🇰dansk version starter længere nede 🇬🇧english version starts her 🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧This is the solution until Monday and then I’ll going to fight for a long term solution and for getting the help that I need because this time my situation hasn’t been okay and I feel like It is only my own responsibility to came up a good solution it feels like the hospital has given up almost before they started to work 😳 the other day when I was at the orthopedic doctor with my foot he didn’t even looked at it and just gave me a certificate to get new afo orthosis but there will be some waiting time because I’ll...

🇬🇧I’m in a bad period🇬🇧/ 🇩🇰jeg er I en dårlig periode🇩🇰 🇬🇧English  version starts here danish version down below 🇬🇧 🇩🇰engelsk version starter her den danske version starter længere nede 🇩🇰 🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧 Hello again I know that I haven’t been active for some time and I’m sorry for that but I will try to make some more post In the future I promise that I have been in a quite bad period with my disease with a lot of back pain from my herniated disk and all of my joints goes out off joint really often. the physiotherapist dose everything she can to try help me out but ehlers danlos isn’t a easy disease to fight with but i have accepted...

🇬🇧English version starts her 🇬🇧 dansk starter længere nede i opslaget  Hello and first of all im so sorry i haven’t posted here in a long period but my  surplus Haven’t been big since last I posted in here I got checked on my anemia with some blood samples and a appointment with the doctor and it all goes so good my samples are normal for the first time since February this year 🙂 ind the last period I had been struggling with a disc protrusion that cause nerve pain you just got a little about my last 3 days here the last 3 days has been quite hard for me ♾♾♾♾♾♾♾♾♾♾♾♾ Sunday afternoon my elbow got out of joint so I...

🇬🇧I have gotten a sports watch /braces which I’m very happy about because it gives me a  chance to keep an eye on a lot of good things such as Step of the Day,distance of the Day, calories, sleep interface,heart rate,blood oxygen,blood pressure, Some people will think why? She is young, she is not doing any exercise because of her disease. But with the disease ehlers danlos syndrome there is a lot of things such as heartbeat, blood pressure and more that isn’t always normal e.g. my blood pressure is often low like 104/68 and I know that I often is low when you have ehlers danlos but for me it is nice to know if it’s low because I then can...

🇬🇧The last 14 days I have been sick with otitis and sore throat and pneumonia so i have gotten some penicillin by my doctor and I think that it is a little better now but I’m still not 100% fresh tomorrow I’m going to Physiotherapist after a break on 14 days because of the sickness so I’m a little afraid that it will not be a wellness treatment because I have had a lot of luxations in this period in this week it is time to get some new blood samples to find out how it goes with my anemia it have now been 4 month since the last check at the hospital but next week I have a appointment at...