🇬🇧hard times / 🇩🇰hård periode Starting here / dansk version længere nede  🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧 Hard period As I have written about earlier here on my profile, I have recently been quite injured on my legs and ankles and so I applied for a small electric wheelchair and after a very hard fight with the local authority and a gotten a certificate by the doctor, the agreement was that I could get the wheelchair that the authority and I had a looked together, so they was ordering the wheelchair home from a company in Sweden over 1 month ago it turns out so that today they told us that it is in stock and can’t come to Denmark before earliest 1 month...

🇬🇧Need a better solution /🇩🇰mangler en bedre løsning 🇩🇰dansk version starter længere nede 🇬🇧english version starts her 🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧This is the solution until Monday and then I’ll going to fight for a long term solution and for getting the help that I need because this time my situation hasn’t been okay and I feel like It is only my own responsibility to came up a good solution it feels like the hospital has given up almost before they started to work 😳 the other day when I was at the orthopedic doctor with my foot he didn’t even looked at it and just gave me a certificate to get new afo orthosis but there will be some waiting time because I’ll...

🇩🇰Det med at vende sig til at være syg er en svær ting som ikke er nem at lære det er en udvikling som man er tvunget til at skulle igennem og langsomt bliver bedre til fordi man er nød til det. For mit vedkomne er det virkelig svært at lære at godt nok er min hjerne hurtig som en på 23 men at min krop ikke er beregnet til hurtige bevægelser og at jeg hele tiden skal bevæge mig som om jeg er en gammel dame på 90.  Jeg kan tit komme til at gøre mange ting på en og samme tid så som at komme gående på vej i en retning og så komme i tanke om at...

DrugStars  Because i take a lot of medication to live with my disease I’m needing to have a medical plan so I’m keeping the 6 hour between my set of medication. I long I’m was taking my medication to breakfast and 6 hour later and right before I was going to bed. But I often forgot to take a set because I forgot if I had taken in. So the day when I was sitting with my iPhone and saw the app DrugStars it grab the chance to try it and I still haven’t regretted it.  It’s an amazing app where you enter the medication you take and how often you take it and the times. Then it simply reminds...

🇩🇰handicapscooter og afo skinner Her de sidste par år er min sygdom gået ned af bakke og jeg kan derfor ikke gå ret langt min krop bliver hurtig udtrættet og så er der større chance for store ledskred fx hofteskred. Derfor har jeg de sidste par år haft et stort skrummel af en handicapscooter som vejede næsten 100kg men for nyligt fik jeg en ny lille fix handicapscooter som kan skilles ad i 5 dele og den må endda komme med hvis man skal ud at flyve, den kan vende på kun 84cm og køre næsten 12 km pr opladning selvfølgelig kommer det an på om det er kørsel i bakker eller på fladt terren. Jeg vil sige at det...