🇬🇧Birthday thoughts🇬🇧 Tomorrow Is my birthday and i turns 24 years old according to my birth certificate although my body feels so much older than that 😂 and yes my everyday life doesn’t look like other 24-year-olds normal life they go to school, work, parties, hobbies, shopping, driving, etc. Where mine contains things and words like: doctor visits, physiotherapy, medicine, aids, medicine grants,early retirement, disability assistance, sickness forecasts,  naps, sleepless nights, orthoses, disability scooter, pain etc. But my everyday life also contains so many other and more important things like: really great family, close relationships, good friends, joy and gratitude for life, laughter and humor, creativity, two little 4-legged helpers🐾, a lot of understanding people around me,  Last but not...

🇬🇧A bad periode but still grateful  Hello again right now I’m having a bad period with Eds. I last week i was having so much back pain and couldn’t even go normally so I took the phone and called my Physiotherapist and was lucky that she could find Time for me and lucky for me it helped. But now I am laying on my bed again because my shoulder and hip was out and now I’m having much pain in it but I’m also knowing that when I’m in a bad period with eds. It’s not helping very much to go to Physiotherapist because all my joints is even more  about to go out and badly I’m knowing this periods...

🇬🇧Family and friends reaction Ehlers danlos syndrome is a congenital rare disease. One of the first things that do it hard to live with is the people’s around you reaction and what they think about it. But here it isn’t the nearest family I’m thinking of. but the family who doesn’t follow from the sideline in the daily life to this people it is hard to understand that it isn’t something I’m fabricating I my life to get attention or something I can choose only to have if i need to do something I don’t care about. One off My daddy’s sisters was telling my parents that ‘she would not waist her time on inviting them at their house again...