My eye problem part 2 / mit øjenproblem part 2

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🇬🇧My eye problem part 2 🇩🇰Mit øjenproblem part 2

English version starts down below the picture

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🇩🇰De sidste par dage siden søndag aften har været rigtig hårde og min energi er helt brugt op og jeg ser frem til en “forhåbentlig” stille rolig weekend det er desværre aldrig en garanti med min sygdom. Det hele startede søndag aften ved at jeg var i bad og mit øje pludselig ikke kunne åbnes læs (https://kragheungen-mitlivmededs.bloggersdelight.dk/2019/03/18/nye-udfordringer-new-challenges/) 

I går morges kørte vi derfor til Kolding sygehus hvor vi havde en tid kl 10:00 vi ankom og jeg fik et spørgeskema jeg skulle udfylde inden jeg skulle ind og undersøges. Vi blev kaldt ind til lægen som havde en elev med og de undersøgte mine ansigtsmuskler og følesans og sagde så at de skulle have en ældre kollega til at undersøge mig da de ikke havde set dette før så de gik ud og kom tilbage med hende hun undersøgte de samme ting og de gik herefter ud for at lægge en plan for videre udredning og lægen kom selv tilbage at de gerne ville have en scanning af mit hoved og jeg tænke straks at det ville der komme indkaldelse til med en tid om mindst 14 dage, men nej jeg kunne gå direkte på røntgenafdelingen hvor de havde en til 30 minutter senere 

Jeg kommer ind i scanneren og det tog 30 minutter, jeg kan ikke lide at blive scannet fordi det er svært at ligge stille så længe for mig og samtidig aktivere de høje lyde mit tinitus men jeg fik det overstået og vi kom tilbage på neurologisk afdeling og der gik længe hvor der ikke skete noget og de kom og sagde at de lige manglede svar på min scanning og til sidst da vi kun var os tilbage på afdelingen (den lukker kl.15) ville lægerne ikke længere se os i øjnene og holdt op med at tale lige når de gik forbi os og vi kunne høre de talte om indlæggelse så vi begyndte at blive lidt nervøse for hvad skanningen viste. Så blev vi endelig kaldt ind igen og hun fortalte at det var fordi de havde lavet en fejl så de havde ikke fået hele hovedet med på skanningen og at de mistænkte en blødning i min hjerne og at vi derfor skulle gå op på 7.sal hvor jeg skulle indlægges og have foretaget en ny skanning denne gang en CT-skanning og hvis den var normal en rygmarvsprøve. 

Vi ankommer til sengeafsnittet og får anvist en lækker enestue med udsigt over havet og vi fik en bakke med lidt mad og drikke ind og kort tid efter kom en portør og kørte mig til skanning jeg kunne nu godt gå der ned selv men det ville de helst ikke have hvilket også var fint nok. Jeg frygtede lidt at skulle ligge stille i 30. Minutter igen men CT tog kun 3 minutter så vi kom hurtigt tilbage til min stue. Efter noget tid kom lægen og sagde at min CT så rigtig pæn ud og at hun derfor ikke ville udsætte mig for en rygmarvsprøve og jeg derfor kunne blive udskrevet men at de ikke vidste hvorfor mit øjenlåg hænger men at de havde læst sig frem til at det kunne forekomme ved ehlers danlos syndrom. Så fra at jeg tænkte at det nok tog max en time på hospitalet 6-7 timer, så da jeg kom hjem fik jeg lidt at spise og gik direkte i seng.

I morges stod vi op klokken 6:00 fordi vi skulle være i Odense kl 9:00 så vi kørte derover og kom ind klokken 9:30 da lægen var forsinket da vi var færdige kørte vi videre til Vejle sygehus hvor far skulle være til hjerteskole kl 10:45 og det nåede vi også. I morgen skal jeg til fysioterapeut igen.

Med så tæt et program ser jeg virkelig frem til en weekend hvor vi ikke skal noget med mindre der går noget helt galt 

🇬🇧The last couple of days (since Sunday night) have been really tough and my energy is completely low and I look forward to a “hopefully” “quiet” and “relaxing” weekend it is unfortunately never a guarantee with my illness. It all started Sunday evening when I was in the bath and my eye suddenly couldn’t be opened read ( https://kragheungen-mitlivmededs.bloggersdelight.dk/2019/03/18/nye-udfordringer-new-challenges/)

Yesterday morning we drove to Kolding hospital where we had a time at 10:00 we arrived and I got a questionnaire I had to fill out before I went at the doctor. We were called in to the doctor who had a student with her and they examined my facial muscles and sense and then said that they needed to have an older colleague to examine me as they had not seen this before so they went out and came back with her and she examined the same things and then they all went out to make a plan for further examination and the doctor came back that they wanted a scan of my head and I think immediately that there would be a letter with a date of at least 14 days out in the future, but no she came back and told me that i could go directly to the x-ray department where they had one time 30 minutes later.

I get into the scanner and it took about 30 minutes, I do not like to be scanned because it is hard to lie still so long for me and at the same time the loud sounds activate my tinnitus but I got it done and we returned to the neurological department where we waited a long time when nothing happened and they came and said that they just was waiting for the answers of my scan and when we were the only one back at the department (it closes at 15 pm) the doctors would no longer look us in the eye and stopped talking right when they passed us and we could hear they talked about hospitalization so we started to get a little nervous about what the scan showed. Then we were finally called in again and she told me that it was because they had made a mistake so they had not got the whole head on the scan and that they suspected a bleeding in my brain and that we therefore had to go up to 7. Floor where I had to be hospitalized and made a new scan this time a CT scan and if it was normal a spinal cord sample.

We arrive at the bed section and was given a delicious single room with a view over the sea and we got a tray with some food and drink in and shortly after a porter came and drove me to scan I could as well go down there myself but they would prefer what was also fine enough. I feared a little to lie still for 30. Minutes again but CT only took 3 minutes so we quickly returned to my suite. After some time the doctor came and said that my CT looked really good and that she would therefore not expose me to a spinal cord sample and I could therefore take home again but that they did not know why my eyelid hung but that they had read themselves to it could occur with ehlers danlos syndrome. So from I thought it probably took a maximum of one hour at the hospital it took 6-7 hour at the hospital, so when We got home we got a little to eat and went straight to bed.

This morning we got up at 6:00 because we were supposed to be in Odense at 9:00 so we drove over and came in at 9:30 when the doctor was delayed when we were finished we drove on to Vejle hospital where my father should be for heart school At 10:45. Tomorrow I’m going to a physiotherapist again.

With such a close program I really look forward to a weekend where we do not need to do anything else than relax unless something goes wrong