🇩🇰En dybere forklaring om ehlers danlos/🇬🇧 a deeper explanation of ehlers danlos

🇩🇰En dybere forklaring om Ehlers danlos

Hej jeg vil i dette indlæg forklare lidt mere om symptomerne på ehlers danlos. Håber ikke det bliver for kedeligt og tørt stof men jeg syntes det er nogle vigtige ting at vide
Jeg har den som skrevet før i type 3 den hypermobile type.
Herunder vil jeg beskrive hvordan eds. Kommer til udtrykke ved De forskellige problematikker.

Huden: ehlers danlos er en bindevævs sygdom hvilket vil sige at vores bindevæv ikke er som andres. Normalt er det bindevævets opgave at binde hud,muskler,organer og blodvæge sammen. Når man har eds er bindevævet på grund af collagenmangel ikke stærkt nok og holder derfor ikke sammen som det burde hvis man var rask. Derfor opleve personer med eds. Ofte at få uforklarlige blå mærker og at have meget dårlig sårheling med dannelse af arvæv, og som mig meget overbevægelige led.

Tænderne: mange patienter med eds. Døjer med dårlig tandstatus da mundens slimhinder heler ikke fungere optimalt, det er især meget dybe tandlommer og og udtalt tab af den knogle, der omgiver tandrødderne. Det viser sig oftes i de tidlige ungdoms år. Mine tænder er også virkelig
Elendige og der knækker ofte store stykker af hvilket jeg har døjet med helt siden jeg var lille selv om jeg har børstet tænder ligeså meget som mine jevnaldrende og som det foreskrives af tandlægerne da jeg var lille mente man dog at det var fordi jeg lå i ilt som lille da jeg kom til verden 7 uger før tid

Hjertet: hver 5 år skal eds. Patienter have scannet hjertet grundet risiko for utætte hjerteklapper
Og udposninger på blodårerne og ved at scanne hvert 5.år mener man at kunne opdage disse forandringer i tide til evt at operere hvis det er nødvendigt. Pågrund af risikoen for utætte hjertekamre giver man derfor oftes antibiotika ved tandlæge indgreb for en sikkerheds skyld.

Ledende: ved eds. Har man oftest problemer med hypermobilitet / løse led samt øget mulighed for at ledende går af led lige som mine gør det er oftest i hænder, fødder og ryggen nogle har dog også kugleled (hofte,skulder) der går af led på grund af slappe ledkapsler

🇬🇧A deeper explanation of ehlers danlos

Hello in this post I will tell you about the symptoms of Eds. As I have written before my type is type 3 hypermobile type. Underneath I will describe how the eds shows. I’m hoping that it isn’t to boring and heavy stuff but I find I useful to know

The skin: ehlers danlos is a connective tissue disease which means that our connective tissue is not like someone else’s. Usually it is the task of the connective tissue to bind skin, muscles, organs and blood vessels together. When you have eds, the connective tissue due to collagen deficiency is not strong enough and therefore does not work together as if it were fast. Therefore, experiencing people with eds. Often getting inexplicable bruises and having very poor wound healing with the formation of scar tissue, and as I have some very moving joints.

Teeth: Many patients with eds. Is diseases with poor dental status as the mucous membranes of the mouth isn’t working optimally, it is especially deep toothpockets and pronounced loss of the bone surrounding the dental roots. It is evident in the early years of youth. My teeth are also really Miserable and is often breaking large pieces of which I’ve had trouble with ever since I was a small kid. even though I brushed teeth as much as my friends and as prescribed by the dentists when I was little the dentist thought it was because I was in oxygen as little when I came to the world 7 weeks before time

The heart: Every 5 years eds. Patients need to get scanned the heart due to the risk of lean heart valve And exposures on the blood vessels and by scanning every 5 years, it is believed to be able to detect these changes in time to possibly operate if necessary. Because of the risk of obese heart chambers, antibiotics are often given by a dentist for safety reasons

The joint: with eds the most person usually you have problems with hypermobility / loose joints and increased ability to lead joints like mine do. it is most often in hands, feet and the back, but some also have problems of the ball joint (hip, shoulder) that goes out of places due to the poor joints